anil

Friday, October 26, 2012

How to die- random musings


It had been months since I had thought of dying. That ghost had been at my elbow for a long time but had largely faded away in the past few years as the prognostications of the doctors failed to materialize and I continued with my life.

Then suddenly the ghost was back again. And two completely contrary events caused this. One was the visit of my little grandson for a few weeks. The utter joy of that visit did a lot to drive all brooding thoughts away and gave me a new lease of joy and life. The second was the shingles attack that often left me willing for the end.

And now both are over and I am left to again plan my life and death.

I recently learned of a protocol called the Liverpool Care Pathway for the Dying Patient, which was conceived in the 90s at a Liverpool cancer facility as a more humane alternative to the frantic end-of-life assault of desperate measures. Today the  Hippocratic oath just drives clinicians toward constantly treating the patient, right until the moment they die,” said Sir Thomas Hughes-Hallett, who was until recently the chief executive of the center where the protocol was designed. English doctors, he said, tell a joke about this imperative: “Why in Ireland do they put screws in coffins? To keep the doctors out.”

The Liverpool Pathway brings many of the practices of hospice care into a hospital setting, where it can reach many more patients approaching death. “It’s not about hastening death,” Sir Thomas said. “It’s about recognizing that someone is dying, and giving them choices. Do you want an oxygen mask over your face? Or would you like to kiss your wife?” The fact is that people would prefer to die gently, loved and knowing it, dignified and ready.


As one patient said “I have fought death for so long. It is such a relief to give up.” We should all die so well. Perhaps one day the Hippocratic Oath -- "First, do harm" -- will mean refraining from aggressive, painful and pointless efforts to prolong life at the expense of the quality of those precious few remaining days.

Morrie in (Tuesdays with Morrie) advises: “Every day, have a little bird on your shoulder that asks, ‘Is today the day? Am I ready? Am I doing all I need to do? Am I being the person I want to be?"

The truth is once you learn how to die, you learn how to live.

Most of us walk around as if we’re sleepwalking. We really don’t experience the world fully because we’re half asleep, doing things we automatically think we have to do. 

The utterly brutal fact is  "Learn how to die, and you will learn how to live.”



5 comments:

  1. from Eugene McCarthy
    As a regular recipient but only a recent 'commentator' on your monthly blogs, let me first commend you on the breadth of subject matter on which you continue to reflect.
    ' How to die' is a frequent topic for an ageing generation. But it also begs the question: what constitutes a 'dignified death'? I am personally hesistant to advocate 'accelerated death' or 'assisted suicide'. Making available this option legally, runs serious risks of abuses- even in countries with strong judicial traditions. Families, friends, and potential beneficiaries too often have mixed motives when a relative is at death's door. Moreover, modern medicine can assuage the ravages of pain- in most cases. I have witnessed hospice care given to terminally ill colleagues, dying peacefully in the company of their families- a dignified death at the end
    Dying alone is, of course, more problematic- and always sad to observe. However, I feel it is more an indictment of society than an argument for accelerated death. In this, I am more inspired by Mother Teresa's response in the streets of Calcutta- to the dying and abandoned- than by advocates of assisted suicide.

    A final reflection: even if death is coming much closer for us all, I try to ask what the close family would really want- including that beautiful grandson you now have. Surely, he would want Grandpa to stay around for another month, year, or even a decade or two more!

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  2. is now posted for all to see. And thanks for your comments. I look forward to more of them in the future.

    Actually this piece was inspired at least partly by a few deaths in my own family. Most of them did not leave a "living will" and the onerous decisions at the end were left to the children who were certainly not prepared for them. It is not easy to authorize the turn off the life saving ventilator on your parents in the hospital. These decisions need to be made by us well ahead of time so that the last moments are peaceful for all. As for those left behind, we need to leave them with good and happy memories that can comfort them throughout their lives.

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  3. Been trying to reach you but no luck...perhaps something is wrong w/ the home phone? And not sure what cell you're using these days.

    Wanted to tell you how moved I was by your most recent blog.

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  4. Anil,
    Enjoyed reading this blog. It's so true!
    Kit

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  5. tuesdays with Morrie is so true.

    was just talking to Ritu on how strong the will to live to live is in all of us. and she gave the example of her father who had 1 leg amputated for gangrene. Doc suggested he keep other leg so that his dependence on others is not there. But he chose amputation. I think all of us would!

    on that morbid note, good morning! great news on the shingles gone. im relieved

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